Tracheo Removal Day 4

Will is more relaxed and comfortable and starting to offer a twinkle of insight into his present state as he offers the tiniest of smiles when Denise comes to visit.

Here he is after his physio with Nancy (on the right) who has offered to do one more session per week for free giving him 5 days of visits and exercise and Elisabeth his full time care nurse on the left.

(The indentation on his forehead is from a long time ago and is not from this fall – they didn’t show up when we all knew him but now he is thinner, they do!).

He is breathing easily as the tracheo starts to heal and his chest is strengthening.

Please keep the donations coming so we can continue his care  (even though Nancy has offered to do one more day per week for free) as we are getting low on funds for flights.

Also we have been told by the Foreign Office that he may not need to pay the Peruvian governments “overstay fee” due to this accident and have been offered help with the forms for the immigration services when it is time to leave.

More soon.

Tracheo removal Day 2

So far so good!  A specialist came in at 8am local time this morning with Denise and he said that it all looks good.  He did advise that there was still a possibility that it would have to be reinserted if he is not able to expectorate or breathe fully once the hole closes up, so we will be keeping a close eye on his blood oxygen levels as the hours and days march on.

Denise stayed with him for a while this morning and will return tomorrow for a bit longer. Penny will visit this afternoon and Elisabeth will be there overnight to monitor him while he sleeps.  More tomorrow 🙂


Tracheo removal

Dear Will supporters and donors,

TODAY, in a couple of hours from now, we will attempt to remove Will’s tracheotomy and see if he can breathe comfortably and easily on his own.  He will be supervised every minute for the following 48 -72 hours to ensure that he is safe and with all your thoughts and prayers he will get through it.

There will be a doctor in attendance and he will be visited by a specialist tomorrow morning to check up on his progress and give the care team any tips to safeguard his progress.

tracheostomy_1Please do whatever you like to do to connect to Will spiritually and mentally and help him through this stage.

Thank you all.

(Pictures afterwards)

Locked in my Body

I was moved by this shortened version of a BBC Three documentary about a Welshman named Terry Newbury who became ill with Guillain-Barré syndrome.  Although this syndrome is a virus and not a traumatic neurological impact like Will has suffered, I wanted to put this up on the site to show how important it is for us to understand what he has been going through, being locked inside his body for this period of time, unable to speak.

The positive note about the documentary is the speed in which Terry was able to speak after the removal of the tracheotomy and the benefits of the physiotherapy during and after his time in hospital.

We don’t have enough of a response from Will to spell out words for him like they do in the documentary and we won’t have access to eye following computers, so there is no way of him telling us how he feels.  As the doctor in the documentary says, “….. it’s that barrier between us that is so frustrating…..”.

Like Terry, Will is receiving physio four times a week from a very positive and energetic person.  The rest of the care home staff and the English speaking visiting team add their love and energy to him every day, the all important Human Factor that I believe is making so much of a positive difference to him.

img_6179I was just on FaceTime with Denise, Nancy the physio and Elizabeth and was able to look at Will with both his eyes fully open while he was having his legs exercised. His presence is so much stronger and he is gripping on with his hands when he is stood up.

We are now planning with the neurologist to have his tracheo removed next week which we believe will make him a lot more comfortable and maybe, with luck, we will hear his first sounds as he trains his vocal chords to speak again.

The next step is prepping him for the long flight home and getting the airline to agree to transport him.

Thank you all for your continued love, care and attention and please keep the donations coming no matter how large or small. We are doing our best keeping him cared for at the lowest costs but we still need your help each month.