5 months and counting

It has now been 5 months since Will’s accident.  He has been on a long and winding road to the care home where he is now and my gratitude goes on his behalf to all of you who have contributed to his well being, especially the incredible people in Lima who look after him on a daily basis.

IMG_4630

Through your love, prayer and donations he is safe, in good health and gathering strength every day.

We are beginning to feed him orally with a view to progressing to the full amount needed each day so we can remove the feeding tube which is no doubt uncomfortable.  We are also working towards removing the tracheostomy permanently so he can learn to breathe normally and start to explore using his vocal chords.  We don’t know how long this will take or what words he will say but in the meantime we are communicating with him through eye movements and hand squeezes, which he is doing more and more.

We are down to our last 2 months of funding to keep him in this location with the weekly physio, supplements and supplies he needs, so on this first day of September, 5 months after his initial fall, I am asking you and everyone you know to make another commitment to donating to his fund so that we are ready for every positive outcome.

IMG_4638I am currently auctioning items for a friend on commission and all those amounts will be sent to the fund. I know some of you are thinking of running in the London marathon, doing some car boot sales and other activities to raise funds, so let’s make an extra effort to bring those to fruition and make sure he gets home to wherever he wants to be.

He has come a long, long way from his first prognosis and there is still so much unknown territory ahead.  Denise, Rosemary, Penny, Charles, Claudia, Elizabeth, Nancy (the physio) and I, cannot do this without you.

Thank you.

Health screening results

Good news 🙂 Will is in excellent physical health!!!

Big thanks to the neurologist and her colleague Doctor Martin (the other doctor that went in last week to see if he was ready for a tracheo reversal) who have done their visits free of charge as they had heard about Will’s case.

A nurse from the lab came in and took blood and had tests done and as a result of the nutrition, supplements and exemplary love and care, the doctors report that he is in excellent shape, with a few minor tweaks.  From the 8 pages of test result data that the doctors have looked through (again free of charge), it shows that all his internal organs are working very well, his blood oxygen level, kidney function, liver and blood glucose are all excellent.

fullsizeoutput_4f74

He needs a little more potassium and protein but all in all he is doing very well.  There might be a little urinary infection but that easily will be cleared up after the result comes back to tell us what it’s from.

Tracheo reversal:  At the moment he is not going to have his tracheo reversed, just a change of tube which is easy and can be done at the care home. He is not quite ready to have the reversal done without certainty that he will be able to expectorate without any problems, so that will have to wait a little longer.

Gastrostomy: And he has also been approved for a gastrostomy which will allow us to take that uncomfortable feeding tube out of his nose and feed him more directly into the stomach. We are negotiating with the same doctors who performed the tests to see if we can get a reduced price for this procedure and to date they have shown a willingness to work with us.

Denise is going in today to observe the tracheotomy reversal so I will get some more info later this evening.

He continues to have physio 4 times a week which sometimes seems to make him a little grumpy and he will be getting a new supply of protein powder and liquid Omega 3 oil.  I met up with Claudia who is one of his care team on Tuesday as she was on a conference trip to San Francisco, so she has taken down these items for me along with some liquid melatonin to help him regulate his sleep patterns.

We still need your prayers, support and donations as we go into the next stage of getting him prepared for his journey home so please keep thinking of ways to spread the word, do a sponsored event (a great British Bake Off type of event?!) or a whip round at your local pub. Thanks all and I look forward to the next update.

 

August 1st, 9am PST

One of Will’s regular visitors is Rosemary Underhay, who worked with the BBC in Peru and is a member of the local Anglican church in Lima, which I attended on my last visit.  She has been in to see him weekly and has diligently kept him up to date with news and current affairs as well as reminding him each time of where he is, how he got here and how many of his friends around the world are thinking of him. She has a lovely speaking voice and I’m sure he appreciates hearing her each week.  Thank you Rosemary. You are much appreciated by all.

IMG_4262

Will’s therapy is continuing and is really beginning to bring him round as you will see from his eye movements in this video.  He is more attuned to Denise’s English voice and you will see him looking over to her as she speaks.

Nancy reports more activity in his leg muscles using her measuring equipment and is a wonderfully caring physio as you will see from this video.

Denise has been given the contact name of someone who can prepare a pair of orthopedic ‘bachas’ (as they are called in Spanish), which are leg supports for each leg so Will can be made to stand for short periods of time.

An appointment has been made for this Wednesday for her to come in and measure Will’s legs for fitment.

More updates as and when we get more information on his progress.